Another Great Ski Day in -18F Temps and Lyme Disease

Posted January 3, 2015.  I got a lot of comments on my post re. Impossible to Recover From Lyme Disease on FaceBook.  Here is one of my responses, hope it helps!!

In a nutshell: I only did oral antibiotics, I BEGGED for IV but a very famous Lyme doctor said IV would kill me, that I was too sick. How ironic was that. I had Bartonella and Babesia too, so I took Rifampin, Plaquinil, etc. (what I took is going to be really different from what you guys take b/c the co-infections will be different) I think the key to my recovery was being very AGGRESSIVE. I never pulsed. I did a scorched earth approach. I never let up on the bacteria/spirochetes, 24/7 massive antibiotic and herb dumps, constantly. Yes it was beyond awful. I literally laid on the couch and cried for one year. It was the most agonizing freakish pain you could imagine (and I know you guys know what I’m talking about!) And I had all the relationship problems you guys have had. In every way it was beyond horrible. I did also take Chinese herbs. Main thing is: do you have a good LLMD/ or Chinese practionner or LLND or all 3? My question was to the doctors: how much experience do you have treating Lyme patients? Do your patients recover? What percentage of your practice is dedicated to Lyme disease?  I was too sick and too desperate to have someone cutting their teeth on me. So, get a very experienced doc who is as aggressive as possible with you. (And I know, it reduces you to bedridden, I know!!!) and if you read what I write on these pages,  you’ll see how I stress no sugar, no alcohol, no dairy, no gluten. (It’s not forever, just during your recovery) Mental attitude is key as well. I always believed I would recover, even in my darkest hours, I carried that belief. And that’s why I keep writing that you can recover, I so needed to hear that. That’s why I keep saying it over and over….. I really care about you guys, be aggressive and believe that it is possible for YOU to recover!!!! OK, now off to hit the slopes….. XO to you all

Skiing and Lyme Disease

Skiing and Lyme Disease

 

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