Posted January 3, 2015. I got a lot of comments on my post re. Impossible to Recover From Lyme Disease on FaceBook. Here is one of my responses, hope it helps!!
In a nutshell: I only did oral antibiotics, I BEGGED for IV but a very famous Lyme doctor said IV would kill me, that I was too sick. How ironic was that. I had Bartonella and Babesia too, so I took Rifampin, Plaquinil, etc. (what I took is going to be really different from what you guys take b/c the co-infections will be different) I think the key to my recovery was being very AGGRESSIVE. I never pulsed. I did a scorched earth approach. I never let up on the bacteria/spirochetes, 24/7 massive antibiotic and herb dumps, constantly. Yes it was beyond awful. I literally laid on the couch and cried for one year. It was the most agonizing freakish pain you could imagine (and I know you guys know what I’m talking about!) And I had all the relationship problems you guys have had. In every way it was beyond horrible. I did also take Chinese herbs. Main thing is: do you have a good LLMD/ or Chinese practionner or LLND or all 3? My question was to the doctors: how much experience do you have treating Lyme patients? Do your patients recover? What percentage of your practice is dedicated to Lyme disease? I was too sick and too desperate to have someone cutting their teeth on me. So, get a very experienced doc who is as aggressive as possible with you. (And I know, it reduces you to bedridden, I know!!!) and if you read what I write on these pages, you’ll see how I stress no sugar, no alcohol, no dairy, no gluten. (It’s not forever, just during your recovery) Mental attitude is key as well. I always believed I would recover, even in my darkest hours, I carried that belief. And that’s why I keep writing that you can recover, I so needed to hear that. That’s why I keep saying it over and over….. I really care about you guys, be aggressive and believe that it is possible for YOU to recover!!!! OK, now off to hit the slopes….. XO to you all