Lyme Symptoms: Do you have the courage to start?

Posted June 27, 2012

running lyme symptoms

No more lyme symptoms!

“The miracle isn’t that I finished. The miracle is that I had the courage to start.”
-John Bingham (running speaker and writer)

When I was sick and bedridden with Lyme and Lyme symptoms I could only dream of running. Day after lengthy day would pass, me just lying there. But then one day I had the courage to do 5 leg lifts, even though I was still in bed. And another day I walked all the way around the outside of my house. A few days later I got onto the elliptical for 2 minutes, really, just 2 minutes. I thought that was wonderful!

Tonight I competed in the Santa Barbara summer racing series, (as I do now every Wednesday night during the summer)… on the beach, running up a steep hill, watching the sailboats race on the horizon next to me, my strong legs carrying me through balmy Santa Barbara sea breezes to the finish line which I cross with the biggest smile you’ve ever seen. I couldn’t walk and now I run.

It’s the courage to start that counts, even if it’s just 2 minutes on an elliptical. Where you finish might amaze you.

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Great Lyme and Lyme Symptoms Resource for Kids

Posted June 27, 2012.  Check this out.  Have all the kids you know watch this so they don’t suffer with Lyme and Lyme symptoms!

 

 

 

 

 

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Lyme Symptoms: What a Great Guy! Pete Carroll, Head Coach of Seattle Seahawks!

June 24, 2012 I was at the Win Forever Event in Los Angeles tonight with Pete Carroll, head coach of the Seattle Seahawks. What a positive wonderful human being he is! When I was really sick with Lyme I saw him in a TV interview where he talked about his struggles and all his failures in the NFL, but yet he kept saying to himself: ”Great things are about to happen.” As a sick person, lying on the couch, that was just what I needed to hear. Even though I couldn’t walk, I held on to those words. Now I’m running marathons! It may take awhile to recover from Lyme and Lyme symptoms but stay determined and wait for those Great things, they’re about to happen! Love you Coach!

Pete Carroll What a Great Guy!

At the Win Forever Event with Pete Carroll

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Chronic Fatigue, Fibromyalgia, etc. Bartonella and Lyme Symptoms

Bartonella Lyme symptoms

Bartonella Rash and lyme symptoms

Posted June 24, 2012

“Among 296 patients examined by a rheumatologist, prevalence of antibodies against Bartonella henselae, B. koehlerae, or B. vinsonii subsp. berkhoffii and Bartonella spp. bacteremia was high. Conditions diagnosed before referral included Lyme disease (46.6%), arthralgia/arthritis (20.6%), chronic fatigue (19.6%), and fibromyalgia (6.1%). This cross-sectional study cannot establish a causal link between Bartonella spp. infection and the high frequency of neurologic symptoms, myalgia, joint pain, or progressive arthropathy in this population; however, the contribution of Bartonella spp. infection, if any, to these symptoms should be systematically

investigated.”

Read the full article.  My bartonella was missed in the beginning.

http://www.akubocrm.com/storage/images/1473files/Bartonella%20and%20Lyme%20EID%20MAy%202012.pdf

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Good information about testing and Lyme symptoms

Posted June 24, 2012

From Tick Borne Disease Alliance: According to many experts, there is no reliable test for Lyme disease and many other tick-borne diseases at this time. Your doctor should make a clinical diagnosis based on your symptoms, medical history, and exposure to ticks. Doctors should not rely solely on tests. There are several blood tests available, but none are completely reliable. The blood test most typically used is called an ELISA (or Lyme titer) test. The test results may mean nothing if it is negative, and it rarely indicates infection if it is performed too early (2 to 6 weeks after the tick bite).

Patients with persistent Lyme Disease and other TBDs seldom have a positive ELISA test, possibly because they have ceased to produce the antibodies detectable by the test. Many experts believe that the ELISA test is only about 30-60% accurate. The ELISA test is not based on the specific Lyme bacteria strain that is most useful for accurate diagnosis. While a positive ELISA test is a reasonably reliable indication of infection, a negative test is useless.

The Western blot test for Lyme Disease (LD) often shows infection when an ELISA test does not. Unfortunately, the U.S. Centers for Disease Control (CDC) have set strict criteria for considering a Western blot test as positive for LD. These criteria were established for statistical analysis of the spread of the disease and were not intended to guide doctors in their diagnosis and treatment. The CDC surveillance criteria miss many people with LD. Doctors who use only the CDC guidelines to decide whether or not to treat leave many infected people without treatment. Even if the test results are not positive by CDC standards, any positive Lyme-specific “bands” are useful indicators of infection. Another test, PCR analysis, looks for the DNA of the Lyme bacteria in blood, urine, or tissue. Multiple tests are usually required before a sample is obtained that contains the bacteria. However, in recent years PCR testing has become extremely reliable when positive. Most doctors are unaware of this test.

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